I'm just wondering...if you'd ever consider trying an alternative therapy? In my practice as a homeopath (and in my own health) I saw some astonishing improvements and even complete cures of things for which conventional medicine said there is no hope and no treatment.
I have a lovely, kind homeopath in England (he works over phone and video) - have known him for 18 years and he's helped me, my family and friends a lot during that time. He's easy to talk to, a great listener, and a very spiritual soul.
Because of the way homeopathy works, it can often undo some pretty terrible damage to the body. It might be worth just asking him?? Rather than putting you on the spot for a reply, I hope you won't mind me just giving you his website and leaving it with you in case you want to contact him and just ask if he thinks he can help you. Maybe he can't, but it would be so amazing if he can.
His name is Simon Andrews and you can find him here: